WHO WE ARE

History of the StigmaSurveyUK – The People Living With HIV Stigma Index

In 2009, the United Kingdom was one of the first countries to implement the rollout of the People Living with HIV Stigma Index. This generated 5 reports, which can be found here. Findings were based on peer interviews with community members. Building on the success of the 2009 rollout, the 2015 Stigma Survey continued to engage with community while also gaining NHS Ethics approval, thus creating a more academically robust dataset.

The Stigma Survey UK

The adult survey was developed in collaboration with community members from a broad range of organisations or institutions, listed below. These people have markedly different backgrounds and their collective knowledge and experience, ensure both a high level of expertise as well as comprehensive representation among the key population groups that are affected by HIV.

The advisory group met regularly throughout the preparation of the survey, the implementation of the study and subsequent analysis of data as well as the dissemination of findings.

The members of the advisory group are affiliated with: FPA, Public Health England (PHE), National AIDS Trust (NAT), HIV Scotland, NAZ Project London, Leicester AIDS Support Services (LASS), All Party Parliamentary Group on HIV and AIDS (APPG), APPG for Sexual Health Northern Ireland, Scottish Parliament, Chelsea and Westminster Hospital, Homerton University Hospital, British HIV Association (BHIVA) Nurses HIV Association (NHIVNA), Children’s HIV Association (CHIVA), International AIDS Society (IAS), Positively UK, African Health Policy Network (AHPN) , Clinic Q, Terrence Higgins Trust (THT), University of Glasgow.

Young People’s Stigma Survey UK

This survey was developed in collaboration with young people living with HIV from across the country. Experts in the field who research or work directly with young people living with HIV were also involved. The advisory group met regularly throughout the preparation of the survey and will continue to do so throughout the implementation of the study and subsequent analysis of data as well as the dissemination of findings.

Members of the advisory group are affiliated with FPA, Imperial College Healthcare NHS Trust, CHIVA, the AALPHI study, NAT, Clinic Q, and HIV Scotland among others.


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The sexual health charity FPA gives straightforward information, advice and support on sexual health, sex and relationships to everyone in the UK. FPA educates, informs and supports people through our specialist sexual health programmes, helpline and information service, counseling service, training and publications and public awareness campaigns. It is the member association of the International Planned Parenthood Federation in the United Kingdom.      
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Homerton University Hospital NHS Foundation Trust provides general health services at hospital and in the community of the Borough of Hackney with staff working out of 75 different sites. They have earned a reputation for quality training offered and are recognized as one of the top recruiters to high quality research studies in the UK with particular interest in neonatal, sexual health and respiratory medicine.     
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PHE exists to protect and improve the nation’s health and to address inequalities.It does this through advocacy, partnerships, world class science, knowledge and intelligence, and the delivery of specialist public health services by working with national and local government, the NHS, industry, academia, the public and the voluntary and community sector. PHE is an operationally autonomous executive agency of the department of Health.